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Courage in the Face of Apert: Victory Against All Odds While Living with Apert Syndrome Edith Clowes if you prefer to useShayne's diagnosis of Apert Syndrome (Acrocephalysyndactyly) is typically characterized by hand and feet webbing and fusing, misshapen cranial bones, progressive immobility of joints, and cervical spine, cognitive issues associated with CNS malformations, jaw malformations and dental malocclusion, and eye, ear, and nose concerns. The incidence is rare, occurring in only 1 in about 2 million births. Shayne has faced life long issues with expected ear,